How do we make our libraries as accommodating to neuro-divergence as possible so that everyone in our community feels welcome?
In Canada, 1 in 50 are on the Autism spectrum. When we think about that stat applied to our patron base, it is significant. How do we give them a sense of belonging in our libraries? (Interesting nugget: in one family, if two or more children have neurodivergence, then there is an 85% chance one of the parents have it also. Keep this in mind on the front desk – if you are helping a child with obvious difference, then chances are the parents will be too.)
One approach: work really hard at our language. Language is a living thing and the language around this condition has evolved.
Autism Canada has a guide that organizations use as a reference: Words Matter Guide. They created it because they saw a need for a shared language that would facilitate respectful and positive dialogue.
Here are some high-level takeaways:
Autism is not a defect, but a difference. Neurodiversity is an idea that people experience the world in different ways. No better or worse as there is no correct way. Autism is not a mental health condition.
We shouldn’t use ‘functioning’ labels anymore (high functioning, etc). Asperger’s is no longer the correct term to use because it referred to a high functioning person with autism. Now it is acceptable to use ‘levels’ language.
In the past, libraries have designed quiet, dark places and labelled them safe for people with autism, but what people with autism actually want is control of their environment. They want to choose a bright place or a dark place; a loud place or a quiet place. They know if they are seeking sensory input or need to regulate.
Autism Canada offers three rules when designing programs and space for people with autism:
- Nothing about us without us
- Just ask
- Assume competency
If you want to learn more, Autism Canada offers free training to libraries and also has a wealth of resources on their website.